AD, Patient & Community Liaison

Job Description:

  • Deliver accurate and empathetic information about disease progression, symptoms, and unmet needs for patients and caregivers
  • Empower patients and caregivers with knowledge and tools to navigate their DMD or SMA journey
  • Educate patients and caregivers about the benefits, proper use, and potential side effects of brand products using approved materials and guidelines
  • Develop relationships with local advocacy chapter leads
  • Attend events throughout the country, host the Novartis table, meet DMD or SMA families, answer questions, and deliver presentations
  • Respond to virtual inquiries from patients and caregivers by phone or email
  • Hold virtual meetings with local patient advocacy leads and communities
  • Provide insights to cross-functional teams to support educational materials, presentations, resources, and market strategy
  • Identify gaps in patient and caregiver knowledge and recommend improvements to educational content
  • Adhere to regulatory and compliance standards, including Adverse Events training and reporting
  • Document interactions and feedback to improve the education program and support outcomes tracking
  • Participate in internal and business reviews and prepare meeting materials
  • Participate in functional planning, including tactical plans and budgets
  • Maintain working knowledge of Concur, Salesforce, FUSE, and related platforms and processes
  • Maintain current scientific knowledge of responsible products and therapeutic areas
  • Ensure compliance with Novartis policies, Code of Conduct, laws, and regulations

Requirements:

  • Bachelor’s degree in healthcare (i.e. social work, genetic counseling) education, or a related field
  • Minimum of 5 years of experience in patient education, pharmaceutical, or healthcare support roles
  • Ability to travel 70% of time, with weekend travel required
  • Reside close to a major airport
  • Bilingual (Spanish/English)
  • Exceptional communication and interpersonal skills
  • Ability to present complex information in an empathetic, clear, and engaging manner
  • Experience delivering presentations in front of a live audience
  • Experience working within regulatory and compliance guidelines in the healthcare or pharmaceutical industries
  • Proficiency in using virtual tools for education, such as video conferencing and webinars
  • Ability to think creatively and conceptually
  • Ability to lead, motivate, develop, and influence others
  • Strong teamwork and collaborative skills and mindset
  • Proven ability to work effectively in a matrixed environment
  • Financial/budgetary experience
  • Experience in neuroscience/neuromuscular therapies, gene therapy and rare disease is desirable

Benefits:

  • Performance-based cash incentive
  • Eligibility to be considered for annual equity awards, depending on the level of the role
  • Health benefits
  • Life benefits
  • Disability benefits
  • 401(k) with company contribution and match
  • Vacation
  • Personal days
  • Holidays
  • Other leaves
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